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asking for advice - why not?

 
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tatt
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Joined: 07 Jul 2007
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PostPosted: Tue Feb 26, 2008 8:57 am    Post subject: asking for advice - why not? Reply with quote

as admin closed a similar topic elsewhere I thought I'd post here.

We all know that doctors vary. Sometimes people see a doctor who helps a lot and they can pass that advice on to others whose doctors may be less well informed. Sometimes people with a medical problem discover alternative treatments (which may then become accepted by doctors) that help. I have personal experience of a medical condition where advice I first received from other sufferers is now recognised treatment and of a condition where a "natural" remedy (unusually one that has had double blind clinical trials) is now used in a major teaching hospital and is on the BMJ best treatments website.

So why can someone seeking help with a medical problem not just be directed to the chat section?
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admin
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PostPosted: Wed Feb 27, 2008 9:48 am    Post subject: Re: asking for advice - why not? Reply with quote

tatt wrote:
So why can someone seeking help with a medical problem not just be directed to the chat section?


I've got a few reasons, so I'll go over them all quickly.

People here have lots of experience (personal rather than medical) of peanut allergy and other allergies. Most of the discussions here are non-medical, about what foods can be avoided, how to deal with schools and so on.

Some touch on medical matters, for example on food challenges or allergy test interpretation. In most cases these threads end with the poster being advised to talk to their GP.

There is little discussion of treatments because there are currently no effective treatments for peanut allergy. However, there's enough people here who know about the area that any misinformation can quickly be corrected. That's not true in other health areas.

Asking people for medical advice can be extremely dangerous. Say someone asks for advice about psoriasis here and is told that some cream worked for the poster's mother. They try it, and end up going into erythroderma and need hospital admission. Then what?

No doctor would give advice on something like that without taking a full history including what has been tried in the past and what effects it had, and examining the patient.

Finally, this site has no advertising on it. If people were allowed to give advice then would be very difficult to stop people popping up and recommending "<foo> cream made from pure and organic ingredients and available for only 29.99 from this web site".

In short, if people want to discuss anything on this site - from the war in Iraq to earthquakes in the UK - then General Chat is the right place for it. But discussion of illnesses should be restricted to allergy, and it really is inappropriate to give advice on treatment.
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tatt
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PostPosted: Wed Feb 27, 2008 10:33 am    Post subject: Re: asking for advice - why not? Reply with quote

[quote="admin"]
tatt wrote:
.
Asking people for medical advice can be extremely dangerous. Say someone asks for advice about psoriasis here and is told that some cream worked for the poster's mother. They try it, and end up going into erythroderma and need hospital admission. Then what?.


Exactly the same thing that would have happened if they'd been told about it in the street - they get treated and avoid that cream again. Many websites do allow such discussion, without any problem.

This is not a website of professionals giving advice therefore if anyone tried to sue you - which I assume is why you're worried - they'd be laughed out of court. OTOH they may discover a new treatment that could help or at least a support group - like http://www.psoriasis-help.org.uk/ - where they can talk to other sufferers.
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admin
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PostPosted: Wed Feb 27, 2008 10:54 am    Post subject: Re: asking for advice - why not? Reply with quote

tatt wrote:
This is not a website of professionals giving advice therefore if anyone tried to sue you - which I assume is why you're worried - they'd be laughed out of court. OTOH they may discover a new treatment that could help or at least a support group - like http://www.psoriasis-help.org.uk/ - where they can talk to other sufferers.


You assume incorrectly. I think it is a dangerous thing to permit people to do. If there are other websites that want to cater for those illnesses, then people can be redirected to them from posts here, but I think any discussion of those illnesses here is not appropriate.
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tatt
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PostPosted: Wed Feb 27, 2008 10:49 pm    Post subject: Re: asking for advice - why not? Reply with quote

admin wrote:
If there are other websites that want to cater for those illnesses, then people can be redirected to them from posts here, but I think any discussion of those illnesses here is not appropriate.


But if you don't allow messages to be posted how can anyone be redirected?

Your website so you can lay down the rules - but the more you restrict discussion the less reason there is for people to visit.
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admin
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PostPosted: Thu Feb 28, 2008 8:35 am    Post subject: Re: asking for advice - why not? Reply with quote

tatt wrote:
But if you don't allow messages to be posted how can anyone be redirected?


If people want to post asking about other websites for specific diseases, that's fine by me. It's posting asking for medical advice from non-medical people that I object to.


tatt wrote:
Your website so you can lay down the rules - but the more you restrict discussion the less reason there is for people to visit.


This website has no money involved in it, there's no advertising so I'm not obsessed about increasing hits. Its purpose is purely to assist people who are struggling with a particular problem with regards to nut allergy.

I would like the site to become a bit more 'chatty', but I do feel that there is too much risk in allowing general medical issues to be discussed in the way you want, even if that means the site has fewer users than it might otherwise.
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Fizzwizz
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PostPosted: Thu Feb 28, 2008 10:22 pm    Post subject: Reply with quote

I have to say I totally agree with Admin here.

Giving specific medical advice over the Internet is both dangerous, and irresponsible. Your GP is the person to speak to about medical advice. It might have something to do with the 10+ years of medical training they receive, but strangely they do know a thing or two about medical matters. A good GP will also know a good bit about alternative treatments too.

Personally I'd prefer peanut allergy UK to stay clear of medical advice, and the fact that admin is prepared to lose hits to uphold this principle and deliver safe reliable information to his users is one of the reasons I respect this site.

Best wishes ... Fizz
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shellz2009
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PostPosted: Wed Aug 19, 2009 10:26 pm    Post subject: Reply with quote

im new to this site but also agree with the mod on this one as some people on other forums i've been on give out really bad advice
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tatt
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PostPosted: Thu Aug 20, 2009 4:56 am    Post subject: Reply with quote

shellz2009 wrote:
im new to this site but also agree with the mod on this one as some people on other forums i've been on give out really bad advice


On active sites poor advice is usually corrected quickly by someone else. I feel very strongly about this because I have had years of seeking help from gps without success and have found the answers to some of my problems via the internet. For one medical problem I had seen 2 NHS consultants, an invasive and unnecessary investigation and still had no help because they were baffled. After searching the internet I found a probable cause, my gp agreed to a trial of the recommended medication and I had a solution.

Gps get very little training in allergies and less in intolerance.
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shellz2009
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PostPosted: Mon Aug 31, 2009 4:23 pm    Post subject: Reply with quote

your very lucky to have good advice then tatt. completly diff forum but i was on a tropical fish forum and just because this person had the most posts people listened to their advice which in result killed their fish. i know completly different to this forum but you get the idea
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tatt
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PostPosted: Tue Sep 01, 2009 1:32 pm    Post subject: Reply with quote

yes I appreciate the problem. Sometimes posters give the impression they are well informed when they aren't.

It was lucky that I got the right treatment in the end only in that I had a gp who was prepared to look at information from the internet. Naturally I didn't rely on the first comment that was made - I did a lot of checking first. Once I had a suggestion for what might be wrong I was able to find websites from medical consultants in my sort of problem stating that it was something that should be considered for my symptoms. It wasn't even a particularly rare problem. I was unlucky to see 2 NHS consultants who were less well informed and to have an entirely unnecessary investigation using NHS resources that could have been better spent elsewhere.

Btw - my experience of tropical fish is that with the best advice possible they still died, it just took a little longer. Sad Never did find out what was wrong (we had other, but not tropical, fish later without problems) but I'd never tell anyone what we did without saying the fish died anyway.
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Victoria Plum
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Joined: 04 Feb 2010
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PostPosted: Wed Apr 21, 2010 9:27 am    Post subject: Reply with quote

I made a huge mistake at the weekend.

I googled a weedkiller and stupidly looked at a yahoo answers forum and took the replies as red.

I happily used the weedkiller in my garden, as I had a spare ten minutes without the kids to get the job done, and then thought... doh! Better check that out again! And the advice was WRONG!!!! I now have to wait six weeks before I can plant crops in my garden as the weedkiller stays in the soil for six weeks! The yahoo answers forum said it was harmless once it reached the soil.

I know it is a different topic, but sometimes, when you are in a hurry, or snowed under, you take advice more literally than you should.
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emmaj24
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PostPosted: Thu Apr 22, 2010 12:39 pm    Post subject: Reply with quote

absolutely and sometimes when you want to believe something you allow yourself to even though you know you shouldn't, the internet can be very good for finding someone who will tell you you're right without any evidence whatsoever. so easy but so tempting. You have to be so careful.
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